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With saddened hearts, we share news of the passing of the Honorable Carrie P. Meek of Florida at age 95. Former Congresswoman Meek was a strong advocate for people with lupus, leading congressional efforts to secure funding for research and support services.  She introduced and worked diligently to secure passage of the Lupus Research & Care Amendments Act of 2000.  The legislation was co-sponsored by 258 members of Congress and signed into law on November 13, 2000, by President Clinton (Title V of Public Law 106-505).

The law authorized the U.S. Secretary of Health to expand research and related activities for lupus.  These activities included coordinating services among federal agencies to address health disparities, increasing awareness to improve early diagnosis and treatment, and authorizing grants to federal, state, and local agencies and nonprofit organizations to expand healthcare and enhanced services for people with lupus.

Congresswoman Meek’s legislation stimulated federal agencies to expand their efforts on lupus. In 2002, for example, the U.S. Centers for Disease Control and Prevention (CDC) issued a landmark report showing deaths attributed to lupus had increased 70% between 1979 and 1998 among black women aged 45–64 years. Consequently, the CDC initiated strategies and funded research efforts, education programs, management activities and awareness campaigns to address health disparities in lupus.

The U.S. Department of Health (DHHS) Office on Women’s Health (OWH) initiated programs focused on improving early diagnosis and treatment among people at increased risk for lupus, including the first-of-its-kind National Ad Council campaign on lupus, “Could I have lupus?” 

Other federal agencies followed OWH’s lead and stepped up their activities related to lupus, including the National Institutes of Health and the DHHS Office of Minority Health, which today continue to provide millions of dollars in federal funding for research, professional training, and public education programs and resources.

The Lupus Foundation of America, Board of Directors, and staff offer condolences to Congresswoman Meek’s family and colleagues and urge everyone with lupus to join us in expressing our sincere gratitude for her legacy of caring and support to our community. 

According to new research, a certain type of dietary fiber known as “resistant starch” may have an impact on lupus disease activity by affecting one’s gut microbiome – the naturally occurring community of bacteria and other microscopic organisms within the gastrointestinal tract. Resistant starch is a type of fiber that resists digestion in the small intestine and ferments in the large intestine, acting as a “prebiotic,” meaning it feeds the good kind of bacteria there. Some of these good gut bacteria, in turn, have been linked to immune system benefits and reduced disease activity in lupus and lupus-related antiphospholipid syndrome (APS, a condition that can cause blood clots and other health problems).

In the latest study, researchers looked at people with lupus and lupus-related APS and analyzed how much resistant starch they ate per day as well as their gut bacteria makeup. Although none of the study participants consumed a diet considered high in resistant starch (more than 15 grams per day), even moderate resistant starch consumption (2.5 to 15 grams daily) was associated with larger quantities of the good bacteria Bifidobacterium, which has known immune system benefits. Additionally, people with APS who ate moderate amounts of resistant starch had smaller amounts of bad bacteria that have been linked to the disease.

Dietary sources of resistant starch include:

• Oats and barley
• Beans, peas and lentils
• Plantains and green bananas
• Rice and potatoes that have been cooked and then cooled

While much remains unknown about the connection between diet and lupus, eating a nutritious, well-balanced and varied diet is recommended. Learn more about diet and nutrition with lupus.

Read the Study

New research finds Vitamin D supplementation for five years taken with, or without, fish oil (Omega 3 fatty acid) may help reduce autoimmune disease, such as lupus.

In the study, led by Dr. Karen Costenbader, MD, MPH, Lupus Foundation of America Medical-Scientific Advisory Council Chair, 25,871 adults were divided into two groups. One group was given Vitamin D and some received a placebo. The second group was given fish oil and some received a placebo. Both groups were monitored just over five years.

Autoimmune disease was reduced by 22% in those who took the increased levels of Vitamin D with or without fish oil. And those that only took fish oil supplements saw disease decline of 15%.

More research is needed to better understand the effects of dietary supplements on autoimmune disease, like lupus. Consult your physician before making any changes to your nutrition and diet. Learn about diet and nutrition with lupus.

Read the Study